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Skyclarys: Senior FF members urge Government to overrule HSE on life-saving drug
Cork dad Craig Coady lost his son Rory (13) to Friedrich’s ataxia in September. His 16-year-old son, Paudie, also has the condition.
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Cork dad may move to Latvia to get life-saving drug for surviving son
https://www.irishexaminer.com/news/munster/arid-41880196.htmlTDs call on HSE Drugs Group to reveal why they decided not to fund Skyclarys
https://www.irishexaminer.com/news/politics/arid-41895088.html
Father of boy with Friedreich’s ataxia devastated as HSE recommends against drug funding – The Irish Times
https://www.irishtimes.com/health/2026/08/12/father-of-boy-with-friedreichs-ataxia-devastated-as-hse-recommends-against-drug-funding/