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https://www.independent.co.uk/news/uk/home-news/nhs-generation-study-adrenoleukodystrophy-ald-b3036514.html
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Brothers found to be at risk of rare condition after ‘bored’ mum enrolled them in study | The Independent
Most children are only diagnosed with adrenoleukodystrophy, also known as ALD, when symptoms appear
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"ALD Can't Stop Brock!" - One family's story ahead of Rare Disease Day
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